Surprise

As August started, I planned my three weeks vacation to be a time to catch up with family.. I spent two weeks at my parent doing just that.. seeing family and investigating thing and see if it was feasible with our dietary restrtictions to move back.. Once those questions were answered.. something happened my daughter got sick.. just a fever.. I didn't think much until the third day when she was super irritable, her eyes were not moving to the right and she still didn't want to walk.. So I grab her and drove to the closest hospital bullied them into getting an ambulance to drive us to the nearest Children's Hospital for testing.. 4 days, 4 test ( Lumbar, blood work, urine sample and MRI) and they did not find anything new! Is this good news? Yes, but it doesn't explain the new eye thing.. After a much testing day and the MRI, she bounces back like nothing ever happened.. She still not moving her eyes but she's happy and she made some progress.. Did the IVIG help along? Not sure... I really need to talk to her neurologist but it's the weekend!!! Ahhh!! Tomorrow hopefully I will get some answers.

The silver lining.. I got to test the children's hospital that is closest to my parents and I'm satified that it's suitable.. I like the neurologist that I spoke with and that is the most important part... The nurses well let just some are more compassionate then others and leave it at that.. And they accomodated her dietary needs without any issues.. I was so happy about that.

This whole episode as driven home that I need to move closer to where we can have support because we can never know when this can repeat itself.. I left my son in the care of my parents and they manage quite well and my son seemed to have enjoyed himself.. My dad certainly did!!

Needless to say I'm exhausted and stressed. My brain in going into 50 directions, as I put question in a list and wonder what the future holds and how I can improve our situation..

On this I say good night..

Take care,
MommaBear